Privacy Policy

Last Updated: 8/30/2024

The Schmidt Initiative for Long Covid (“SILC”) advances clinical care for Long Covid patients globally. This Privacy Notice explains the personal information we collect, use and share to operate SILC.

INFORMATION WE COLLECT

If you receive a grant, we collect:

  • Basic biographical details (e.g., name, gender, date of birth) and contact information
  • Financial and tax information, e.g. for dispersing grants or other payments

If you contact us through our website, we collect:

  • Name
  • Email
  • Any information you share

When you browse our site, we collect:

  • Technical Information, such as your browser, operating system, language preference, and IP address
  • Cookies, pixels, and similar technologies that are used to track online activity
  • Usage information, such as which pages you viewed and the websites or search terms that referred you to the site

HOW AND WHY WE USE INFORMATION

  • Disperse Funding: We use the data we collect to process grants to our partners in order to fortify healthcare infrastructures, improve patient care, and advance medical research.
  • Website: We use technical information, cookies, and usage patterns to operate and improve our website. For example, we perform data traffic analysis to evaluate the usage, performance, and safety of the website.
  • Communicate With You: If you reach out to us through our website or otherwise, we will use the information we collect to respond to you.
  • Manage Operations: We use the information we collect to manage our operations, including performing accounting, auditing, and other internal functions.

LEGAL BASES OF PROCESSING

We rely on legitimate interest to process your personal data. Legitimate interest refers to something that is desirable to us or someone else (including you), is reasonably expected given the nature of our services, and doesn’t create any undue risk to you.

We may also process information to comply with applicable laws and regulatory requirements, or as requested by government or regulatory authorities. We may use information to defend or establish legal claims; protect the safety, property, or rights of SILC or others, including you; or in connection with corporate restructuring, such as a merger, sale, or other transfer of assets.

HOW WE SHARE INFORMATION

  • Program Partners: We may share aggregated or anonymized information with our program partners.
  • Affiliated Entities: We may share personal information with our affiliated entities, including but not limited to Hillspire LLC.
  • Service Providers: We share your information with third-party service providers to process it for us and help us provide our services. We use service providers for things like web hosting services or managing communications.
  • Legal Purposes: We may also share your information if it’s required by law or legal process. For example, we may share your information in response to government requests, or to establish or defend legal claims. We also may share information in connection with a merger, an acquisition, or a transfer of our assets or the assets associated with one of our programs.
  • Data Transfers: Some of the recipients described in this section may be in different countries with different privacy laws. For our users located in the European Economic Area, UK, Switzerland, or Brazil, if we transfer your information to a country that has not been recognized as providing an adequate level of data protection, we rely on safeguards such as agreements with terms approved by the European Commission or ensuring that the recipients are certified under the EU-US Data Privacy Framework. If you are a user in the European Economic Area (EEA), UK, Switzerland, or Brazil, and we transfer your information to a country that does not provide an adequate level of data protection, we rely on safeguards to protect your information. Such safeguards include agreements with terms approved by the European Commission or ensuring that recipients are certified under the EU-US Data Privacy Framework.

YOUR RIGHTS

Users located in the EEA, the UK, Switzerland, and certain U.S. states have the right to access, delete or correct personal information we hold.

You may also have the right to object to certain processing, such as processing based on legitimate interests. In certain cases, you also may request that we provide you with a copy of your personal information in a portable format. To exercise any of these rights, please contact us as described in the “Contact Us” section below.

CONTACT US

The Schmidt Initiative for Long Covid is responsible for the processing of your personal information as described in this Privacy Notice.

For more information about the processing of your personal information or to exercise your rights, please contact us by email at privacy@silc.org.